Last night Seth and I with Colton's Nana and Pops (my mom and dad) celebrated New Year's Eve with Colton in the NICU. We had a party in the Children's Hospital waiting room, toasting in the new year with sparkling white grape juice. Seth and I made sure to blow Colton a kiss through his incubator at midnight. Colton's lungs are still a concern but he is doing much better, there is talk of taking him off the high frequency vent. The ups and downs of this whole experience are almost too much to handle, but luckily we have God on our side and he can get us all through anything.
January 4, 2008
Great news, Colton got back on the conventional vent yesterday. This is definitely a step in the right direction. He is on very low oxygen settings also. Because of this change I will soon get to hold him again, oh how I have missed that. We decided to the start the new year back in Frankfort, so we are no longer staying at the Ronald McDonald House, it is hard to be farther away from him but he is doing better and we are sure there are other people who need our room more than we do now. We are so grateful for The Ronald McDonald House and The March of Dimes, two organizations that do so much to make this difficult time just a little easier.
January 6, 2008
Colton is still doing very well on the smaller ventilator, his settings have remained low! He was resting well during our visit last night. He is 6 weeks old today!!! There are talks of brain surgery on Tuesday to put in the ventricular reservoir for Colton's brain bleed. This is a tube into the ventricle which exits the skull through the top of the his head and ends in a reservoir placed under the skin. Fluid can then be removed from the reservoir as necessary to relieve any increased pressure on the brain. Over a period of time the excess fluid resolves and the reservoir can be removed. Sometimes if the problem persists a ventriculo-peritoneal shunt is placed, a tube connecting the ventricles and the abdominal cavity, which drains the excess fluid into the abdominal cavity. This will be a hard thing for Colton to go through but Seth and I both understand how much this can help him in the long run. We are meeting with the neurosurgeon on Monday to discuss the surgery and what time on Tuesday it will be done. I get to change his diaper just about every time I am there for a "care time". Changing diapers is one of the highlights of my day literally, I'm not sure it will be that way for very long.
January 7, 2008
We just got off the phone with the NICU, Colton will have brain surgery in the morning at 7:30. Please keep Colton in your prayers, this is a very hard surgery for a two pound baby. We are all scared but hoping for the best.
Your story and blog are amazing! Thank you for sharing your story and being so inspiring!
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