Thursday, January 13, 2011


We've had lots of snow in Kentucky this winter. Colton really loves the white stuff but he has been too sick to go outside and play in it. His favorite thing is going sledding! He went back to school today and guess what they are learning about? You guessed it, snow!

After a meeting at the hospital to help start a local NICU support group (more on that later) I came to Nana and Pop's house to do craft time with Colton. We decided to make today an indoor snow day.

We played in the snow.

Tasted (that part wasn't planned) and talked about the snow. Colton can say "snow" and "cold".

Read about the snow.

And even made a snowflake picture.
Snow is fun and pretty but I'm pretty sure we aren't the only ones looking forward to Spring!

Friday, January 7, 2011

A (singular) Picture

One of the only photos of Colton on Christmas. Most of the day he was sleeping or fussing because he felt so terrible. Check out his super-duper cool Mickey Mouse Jamas from Nana!

Thursday, January 6, 2011

Christmas and New Years in a Nutshell

Colton has been sick the WHOLE month of December and so far in January... Ear Infection, Croup and now some type of Respiratory illness. He has been miserable. We have been to the hospital for blood work twice, admitted once for dehydration and I've lost count of our trips to the Pediatrician. They have tested him for flu, RSV and strep, all were negative. At one point he was so sick that we had to restrain him to keep him from punching himself in the face (like hard, with blood). It's been so rough on him and sometimes he grabs my neck, squeezes me and says "Mama" in his hoarse little voice. I can tell he wants me to make him feel better but I can do nothing to make him feel better. It is the most frustrating thing in the world.

Right before all this started we went to Michigan to see Dr. Trese (Colton's Retina Specialist). They did an exam under anesthesia and determined that his retinas were still attached (good news) but there had been no improvement (bummer). I have completely accepted 100% that my son is blind... it is so weird to say that so bluntly. I usually say visually impaired or "he can't see very well" but I am finally comfortable with using the B word. Today at the Pediatrician I saw a little boy admiring the fish that were on the waiting room wall paper, I had a moment of sadness thinking about simple things like that that my son will never do. I took a deep breath, looked down at my little man and smiled. He is amazing and smart and happy and my little miracle. There are so many things he will be able to do!

One thing he has been doing (and LOVING) is going to school. He has been on Christmas break and every time we say something about his teachers or classmates his eyes light up, he will go back to school next week as long as we get all this sickness straightened out.

So that is just a little update on us Darnells. 2011 is going to be a great year, I just know it.