Colton has been sick the WHOLE month of December and so far in January... Ear Infection, Croup and now some type of Respiratory illness. He has been miserable. We have been to the hospital for blood work twice, admitted once for dehydration and I've lost count of our trips to the Pediatrician. They have tested him for flu, RSV and strep, all were negative. At one point he was so sick that we had to restrain him to keep him from punching himself in the face (like hard, with blood). It's been so rough on him and sometimes he grabs my neck, squeezes me and says "Mama" in his hoarse little voice. I can tell he wants me to make him feel better but I can do nothing to make him feel better. It is the most frustrating thing in the world.
Right before all this started we went to Michigan to see Dr.
Trese (
Colton's Retina Specialist). They did an exam under anesthesia and determined that his retinas were still attached (good news) but there had been no improvement (bummer). I have completely accepted 100% that my son is blind... it is so weird to say that so bluntly. I usually say
visually impaired or "he can't see very well" but I am finally comfortable with using the B word. Today at the Pediatrician I saw a little boy admiring the fish that were on the waiting room wall paper, I had a moment of sadness thinking about simple things like that that my son will never do. I took a deep breath, looked down at my little man and smiled. He is amazing and smart and happy and my little miracle. There are so
many things he
will be able to do!
One thing he has been doing (and LOVING) is going to school. He has been on Christmas break and every time we say something about his teachers or classmates his eyes light up, he will go back to school next week as long as we get all this sickness straightened out.
So that is just a little update on us Darnells. 2011 is going to be a great year, I just know it.
